Whose baby is A ROCKSTAR???

Mine. That's who!!
Jonah Daniel. "Spuds" My little man. Isaiah's favorite. Daddy's little boy.
Wednesday of this week Jonah and I made our way to the University of Iowa Hospitals for his check up. This was to be the day we found out if we needed a feeding tube or not.
Many prayer went into the preparations for this day. I prayed that God would give me the wisdom I needed to effectively advocate for my boy. I prayed for the strength to follow through with whatever the recommendations might be and the Grace to accept His will.
I will never understand what it is about walking from doctor to doctor and test to test that sucks the energy right out of you but seriously by noon I was completely exhausted and still had several hours left of our day. We had an hour break at noon so I decided to take a walk outdoors. BEST decision of the day. Soaking up the warmth of the sun and enjoying a gentle breeze was exactly what we both needed.
Neurology report: Our sweet boy has no disease or syndrome that would explain his difficulty gaining developmental milestones. It is likely genetic. He is delayed significantly but is expected to develop at a steady pace. We need to adjust our expectation and celebrate every milestone no matter when it is achieved. He may require help longer in life that our typical children. But his quality of life will be good.  They recommended further testing but I declined based on the fact that the results would merely place a label over his head and not change the outcome. So What is the point?? I find that when I have allowed my children to be labeled then outsiders change the way they interact with them even before giving them a chance to grow. Not always but enough to feel the need to protect Spuds from having the same experience.
Gastroenterology no changes. Keep meds as is and on board they have allowed him to continue to grow and gain weight which is very exciting just 6 months ago he was in the 17% for his age/size he is now in the 26th% YIPPEE!!! 15% for height but hey you can't have EVERYTHING!.
Best report of the day came from Pulmonology. His asthma is finally under control with our treatment plan of inhaler, prednisone and Augmentin as needed for flare ups. Testing showed no new lung tissue damage. Tests also showed that he is still aspirating and has flash penetration of liquids BUT the thicker the liquid is the easier it is for him to safely swallow. We have done great in keeping his fluids and foods thick minimizing the damage and potential damage to his lungs! YAY!! all this means that we have a plan in place that is working for him to continue to grow and make progress without surgical intervention! No feeding Tube!! This is one happy thankful momma!
We will continue working with him on these plans. And celebrate all the wonderful miracles God has been doing in his little life!! Praise The Lord for His guidance love and protection. No matter what, Spuds will always be a rock star to me!